Act I – So Your Doctor Says You Need an LVAD?
Just heard you need an LVAD? You’re not alone. Here’s what it means, what to expect, and how to take your first steps.
Just heard you need an LVAD? You’re not alone. Here’s what it means, what to expect, and how to take your first steps.
Starting your journey with an LVAD is just the beginning of a new chapter in your life. Whether your path to this point has been through heart failure, a heart rhythm issue, a viral infection, or any number of conditions, you are joining a unique group of people—those who rely on the power of a battery to support their heart and their lives.
This is a big transition, and naturally, you probably have many questions. It’s okay to feel unsure. What you’re experiencing is significant, and we’re here to help guide you through it. Whether you’re seeking information or just someone who understands, consider reaching out to us. We can connect you with other LVAD patients who can share their experiences, offer support, and even mentor you as you adjust.
What is an LVAD?
Is a normal life possible with an LVAD?
What are the possible side effects of the LVAD?
How to handle your diagnosis like a pro
Assembling a Mental Health Team
A Left Ventricular Assist Device (LVAD) is a mechanical pump used to help people with heart failure by supporting the left ventricle in pumping blood to the rest of the body. The left ventricle is responsible for sending oxygen-rich blood to the aorta, which in turn distributes it throughout the body, making the LVAD critical for maintaining life by ensuring a steady supply of oxygen to tissues and cells.
The device works by taking blood from the left ventricle and pumping it into the aorta. It consists of several key components:
LVADs are primarily used for individuals with end-stage heart failure and can serve as a Bridge to Transplant (BTT), supporting the patient while they await a heart transplant, or as Destination Therapy (DT), for those who are not eligible for a transplant. The LVAD helps improve quality of life, alleviating symptoms, and enhancing survival until the person either receives a transplant or, in the case of DT, continues using the device for the long term.
LVAD use has become more common, with over 2,500 individuals receiving one annually in the United States, due to improvements in device technology leading to better survival rates for patients.
See the Heartmate 3 in action by watching this video.
Living with a Left Ventricular Assist Device (LVAD) can feel surprisingly normal, although there are specific adjustments to make in daily life. Some of the aspects of life with an LVAD include:
These activities, while requiring some preparation and adjustments, are all within reach for LVAD patients. As you progress, you’ll learn how to safely approach these activities and make them part of your routine again. A positive attitude, along with persistence and support, is essential for achieving these goals.
Ultimately, while living with an LVAD may require some adjustments, it is a life-enhancing device that can make a huge difference. Many people who live with it find themselves leading fulfilling, active lives.
The benefits of a Left Ventricular Assist Device (LVAD) procedure include significant improvements for those with end-stage heart failure. The device:
In terms of success, the procedure doesn’t cure heart failure but does improve life expectancy. About 80% of people who receive an LVAD are alive one year later, and nearly 50% are alive four years later.
However, there are also risks and complications associated with LVADs, including:
Recovery typically involves a hospital stay of 14 to 21 days, followed by follow-up visits with your healthcare provider. Initially, appointments are frequent (weekly for a few weeks) and taper off as you recover. If you’re awaiting a heart transplant, follow-up visits are at least every three months.
Signs to call your healthcare provider include:
Ensuring good communication with your healthcare provider about risks, recovery expectations, and when to seek help is key to managing your health after receiving an LVAD.
Receiving the news that you need an LVAD can feel overwhelming and devastating, but how you handle this moment is crucial in shaping your journey. Everyone processes such news in their own way, and there is no right or wrong way to feel. The key is giving yourself time to absorb and process the diagnosis. You may not fully understand it at first, and you certainly won’t have a clear plan of action, but that’s okay. The first thing you can do is allow yourself to adjust.
Think of someone like Tom Brady—success isn’t just about talent; it’s about professionalism in every moment, including how you face setbacks. Handling this news with grace and determination, even when it feels tough, is part of the path forward.
Constructive steps to process your diagnosis: Once you’ve taken some time to relax and allow the news to sink in, it’s helpful to take proactive steps. Reaching out to others is a great way to begin processing:
Each of these steps can help you process what you’re experiencing in a healthy way.
One of the most important aspects of dealing with an LVAD diagnosis is ensuring you have the right mental health support in place. Here’s how to start:
Remember, you don’t have to face this journey alone. Building your mental health team and leaning on others will help you maintain the strength and resilience needed to navigate the challenges ahead.