FAQs

A Left Ventricular Assist Device (LVAD) is a mechanical pump that supports your heart if it can’t pump blood well on its own. It helps move blood from your heart to the rest of your body. People usually receive an LVAD when they have advanced heart failure. Your medical team can tell you exactly how the device works in your specific case, but many patients report increased energy and improved quality of life once they’ve recovered from surgery.

That depends entirely on your treatment plan. Some people have an LVAD temporarily while waiting for a heart transplant (this is called a bridge to transplant). Others may live with it long term (destination therapy). There’s no one-size-fits-all answer, so your doctors will guide you based on your condition, age, and transplant eligibility.

Many people with LVADs are able to shower, but not without taking precautions. The external parts of the device—including the driveline, controller, and power sources—must be protected from water. Some people use a shower kit or waterproof coverings. Your VAD team will show you how to shower safely without risking infection or damage to your equipment.

Life won’t look exactly the same, but many people do return to routines like working, cooking, walking, spending time with loved ones, and even traveling. It takes time and adjustment, but day-to-day life can become manageable again. Your care team can guide you on what’s safe based on your personal health and recovery progress.

Many people sleep with the controller and batteries in a vest, bag, or placed safely on a bedside stand. It takes a little trial and error to find what works best. It’s important to avoid pulling on the driveline and to make sure everything stays connected and secure. Ask your team about sleeping options and equipment that others have found helpful.

This depends on your overall condition and your medical team’s assessment. Some people return to driving once they’ve recovered and are stable. Others may not be cleared due to risk of fainting or other complications. Always talk to your VAD team before getting behind the wheel again.

Your LVAD runs on batteries and has a backup power plan. Most people keep charged spare batteries and a power base unit (PBU) nearby at all times. In case of a longer outage, you may need a generator or access to a place with power. Your team can help you build a solid emergency plan tailored to your home and routine.

Yes, but it takes preparation. You’ll need to bring all your equipment—including spare batteries, power cords, and extra supplies—and coordinate with your VAD team before you go. You may also need documentation for airport security, and a list of hospitals along your route. Many people with LVADs successfully travel by car or plane with good planning.

Nutrition and physical activity are highly individual. Some people follow a low-sodium or heart-healthy diet. Others participate in light exercise or cardiac rehab once cleared. Your VAD team or dietitian can recommend what’s appropriate for you. Avoid making changes without consulting your medical providers first.

If you feel lightheaded, short of breath, see unusual alarms, or notice changes in the driveline site, contact your VAD team immediately. Don’t try to diagnose or fix things yourself. Trust your instincts—if something feels off, get help right away.

Caregiver support resources focus on several vital areas. These include practical skills for daily care, self-care strategies for managing stress, effective communication techniques, and understanding the medical aspects of heart failure and LVAD management. Specifically, resources are available for managing the driveline site, medication schedules, recognizing signs of complications, understanding LVAD function, and developing problem-solving skills.

There are also guides to healthy living such as nutrition and exercise, specifically tailored for those with heart conditions. Emotional and mental well-being support is also available through stress management tips, cognitive behavioral therapy exercises, mindfulness techniques, and caregiver support groups. Many resources also focus on establishing healthy routines, encouraging patient independence, and connecting with social support networks.

Managing stress as an LVAD caregiver requires a multifaceted approach. It’s important to recognize the signs of caregiver stress, such as increased irritability, fatigue, and difficulty concentrating. Implement self-care practices like maintaining a balanced diet, getting regular physical activity, ensuring sufficient sleep, and attending to your own medical needs.

Schedule time for hobbies and interests outside of caregiving. Practice techniques to manage emotions, like giving yourself quiet time or reading something uplifting when overwhelmed. Also, consider seeking support from counseling professionals who can help caregivers develop coping mechanisms. Importantly, don’t hesitate to ask for help from friends, family, or through caregiver support groups.

The implantation of an LVAD brings significant changes. Immediately following the procedure, your loved one will need substantial assistance with daily activities. Over time, the person may become more independent. However, ongoing help will still be necessary, such as cleaning the driveline site and managing medical appointments.

You might also need to become familiar with the LVAD, how it works, and what to do in emergency situations, potentially involving your local energy company or first responders. Both the caregiver and the patient will need to adjust to new routines and lifestyles. Additionally, remember that emotions will likely fluctuate for both parties, with a mix of gratitude, stress, frustration, and possible resentment; you need to be prepared to navigate these feelings.

As a caregiver, you may help with equipment checks, battery changes, dressing changes, organizing supplies, and keeping track of medications. Beyond the physical tasks, you’re also emotional support, an extra set of eyes, and often the first person to notice if something seems off. It’s a big responsibility, but you’re not expected to know everything on day one. The hospital team will train you.

Most caregivers receive hands-on training from the hospital before the patient is discharged. You’ll learn how to handle alarms, manage the power system, change dressings, and respond in emergencies. Don’t hesitate to ask questions or take notes. It’s a lot at first, but repetition builds confidence.

Early on, it’s common for LVAD patients to need constant supervision. As they recover and get more confident with the equipment, they may be able to spend time alone. This decision should always be made with input from the VAD team, who will assess safety and readiness.

Follow the emergency plan you’ll receive from your VAD team. This usually includes contact info, backup gear locations, and steps to take for specific alarms or symptoms. Keep this information somewhere accessible at all times.

Keeping the driveline site clean and dry is critical. You’ll likely be in charge of changing the dressing, which must be done using sterile technique. Your team will show you how. Make handwashing a habit and be alert to any signs of redness, drainage, or swelling.

Each device has specific alarm sounds and messages. Caregivers often learn to recognize these and notice changes in the patient’s appearance or energy level. If something doesn’t seem right, always call the VAD team—better safe than sorry.

With proper planning, many LVAD patients and caregivers travel successfully. Bring backup equipment, check in with the care team before leaving, and know where the nearest hospital is at your destination. Road trips, flights, and cruises can all be doable with enough prep.

At a minimum, carry spare batteries, a backup controller (if required), extra dressing supplies, and emergency contact information. Many caregivers keep a “go bag” ready with everything the patient might need.

Start with someone you trust. If you need more support, reach out to a counselor, social worker, or caregiver resource organization. Your hospital team may be able to refer you to helpful services.

Patients often deal with anxiety, equipment concerns, and logistical issues like power access and dressing changes. Providing private, quiet spaces, minimizing wait times, and ensuring clinical staff are familiar with the basics of LVAD equipment can go a long way. Ask patients if they need outlets or help positioning their driveline gear. When in doubt, ask the patient what works best for them.

Most patients will carry an LVAD emergency information card or binder. If not, call their implant center immediately. Avoid using automatic blood pressure cuffs or defibrillators until you consult with their VAD team. Some providers may not detect a pulse or normal BP — this is expected. Use Doppler or MAP if needed, and always defer to their care team for next steps.

Patients often maintain detailed health records. Giving them a summary of vitals, weight, labs, and medication changes (printed or electronic) is extremely helpful. Include date/time and provider contact details in case they need to follow up later or share it with their VAD team.

Many patients will have a direct line to their coordinator or cardiology team. When dealing with issues involving medication changes, infections, or anything cardiac-related, always contact their VAD team first. They’re the ones managing the device and any systemic impacts.

Always ask the patient if their team has cleared the procedure. Some common medical activities — like MRIs — are off-limits. Prophylactic antibiotics might be required for dental work. Patients typically know their restrictions, but confirm they’ve spoken with their team before proceeding.

Be patient. Many are overwhelmed post-surgery and are still adjusting to how their body and device feel. Use simple language, ask open-ended questions, and give them time to explain their concerns. Some might not even know what to ask yet.

Make sure patients have space for their gear (batteries, controller), access to power outlets, and room to move safely. When admitted, ensure staff on the floor are briefed on basic LVAD safety. Avoid confusion over alarms or power sources by giving clear roles and contact protocols.

Don’t panic. If the patient is conscious, ask what the alarm means — most can explain. If not, locate their emergency contact card or bag, and contact their VAD team immediately. Never try to silence or fix the alarm unless you’ve been trained to do so.

LVAD patients may experience depression, anxiety, PTSD, or grief. While you shouldn’t assume, it’s wise to screen regularly or refer to behavioral health. Encourage open conversation. Many patients feel isolated, and simply asking about how they’re coping can make a difference.

Listen more than you speak. Acknowledge what you don’t know, and let them be the experts in their daily lived experience. Follow up, keep communication clear, and show that you’re part of their long-term support team — not just a one-time interaction.

They’re relatively rare — most people with heart failure don’t reach the stage of needing one. But for those who do, the LVAD can be life-changing. Thousands of people in the U.S. live with one, and the community is growing thanks to improvements in technology and care.

You might hear a soft humming noise if you’re close enough — the pump is constantly running. The device itself is inside the chest, but the batteries and controller are worn outside the body, usually in a shoulder or waist pack.

It depends on the person. Many are happy to explain, especially to spread awareness. But don’t assume — be respectful and curious without being intrusive. “Hey, I’ve never seen that before — is it medical equipment?” is a good starting point if you’re unsure.

If the person is unconscious, call 911. Do not perform chest compressions unless a medical professional specifically tells you to. Look for their emergency instructions card or medical alert info. If they’re awake but there’s an alarm going off, let them guide you or help them contact their VAD team.

Search for reputable hospital websites, LVAD support communities, or organizations focused on heart failure. There are many online forums, local support groups, and educational videos that offer helpful insights — just be cautious about unverified advice and always defer to the patient’s care team for anything medical.